MCSA NEWS – Online Edition

December 2009, Volume 4, Issue 12

 

Entire PDF Edition: http://mcs-america.org/December2009.pdf  (View, Download, and Print)

 

INSIDE THIS ISSUE:

 

An Interview with Author Eva Cabellé    Missing: A Life Broken by Multiple Chemical Sensitivities

Social Security Disability   Representing Your Claim

Time to Look at Your Home in a Different Light   Basements, Part 1

Formaldehyde Linked to Asthma

Preying on the Desperate   Miracle Cures Hold False Promise

Vaccine Adjuvant Alters Neurological Function in Rat Experiment

Q&A  How to Block EMF Exposure

Chelation Effective for Autism

Q&A   Scent Strip Advertisements

Patient Support and Resources

Community News

Featured Research Studies

 

 

An Interview with Author Eva Cabellé

Missing:  A Life Broken by Multiple Chemical Sensitivities

 

 
 

 

 
 

Eva Caballé is the author of the recently published book in Spanish, Desaparecida: Una vida rota por la sensibilidad química múltiple (Missing: A life broken by Multiple Chemical Sensitivities) published by El Viejo Topo, Barcelona, Spain, 2009.

 

By Salvador López Arnal

 

 “Yes, there is something hidden in this silence. It is the interests of the chemical and pharmaceutical companies so that people won’t know that their products are causing new and terrible illnesses like Multiple Chemical Sensitivities (MCS). Recently it has been demonstrated that MCS is not a psychological illness and that old studies that said it was were fabricated to protect the interests of the chemical and pharmaceutical industries.”  - Eva Caballé

 

Eva Caballé is a 37 year-old Barcelona economist who lives with Multiple Chemical Sensitivity. She was a bank employee and was a member of the rock group Lefthanded and now is the author of the recently released book (in Spanish) released by the publishing house, Libros de El Viejo Topo, Desaparecida: Una vida rota por la sensibilidad química múltiple (Missing: A life broken by Multiple Chemical Sensitivities). In the book’s introduction, Clara Valverde, says: “…But Eva is not weird. It is known that 5% of the population now lives with severe MCS and that up to 15% have mild or moderate MCS. All those people who are bothered by smells, those are part of that 15%. But most doctors and the majority of society are not aware of this and that is why it has taken Eva so many years to receive the right diagnosis. Eva only has the help of her immediate family. There are no demonstrations about this out on the streets, nor is her case on the front page news.”

 

Eva Caballé is also the author of the blog NO FUN. She says: “NO FUN is a blog about Multiple Chemical Sensitivities, Chronic Fatigue Syndrome/Myalgic Encephalitis and Fibromyalgia with information and advice for people who are sick and for anyone who wants to live a healthier life free of toxics.”

 

López-Arnal: Let’s start with a definition. What is MCS?

 

Eva Caballé: MCS is an acquired chronic illness, not a psychological one, which manifests itself with multisystemic symptoms as a reaction to a very small exposure to chemical products which are normal everyday chemicals, but unnecessary ones like perfumes, air fresheners, and laundry softeners. The symptoms, which are chronic and maybecome acute in a crisis, include fatigue and respiratory, digestive, cardiovascular, dermatological and neurological problems.

 

MCS is a syndrome with three grades of severity, so not all who are sick suffer the same level of disability and isolation. It is an illness which has been known since the 1950s, but it has yet to be recognized by the World Health Organization (WHO).  More than 100 research articles support the organic basis of MCS and the number of people affected is increasing rapidly, people are affected at a younger age, and the European Parliament includes MCS in the growing number of illnesses related to environmental factors.

 

LA: You say that MCS is not recognized by the WHO despite the number of scientific articles that support the organic basis of this illness. Why do you think that the WHO is so skeptical, so cautious?

 

EC: We know that the WHO has been debating the MCS issue for years. But the process of recognizing the illness is taking longer than usual due to the pressure that the chemical and pharmaceutical industries are putting on the WHO, as they are not interested in having it known that they are directly responsible for this illness. Without going any further, in Germany, where MCS is recognized as an illness, the industries continue exercising their control through tools like Wikipedia. This was denounced by the CSN Association in an article which I translated and published on my blog. The article about MCS in Wikipedia in German is edited each day, sometimes every few minutes, because the administrators of Wikipedia, who have industry interests, veto the information trying to make sure that MCS is not known or if it is, that it be thought of as a psychosomatic illness.

LA: You also say that the number of people with MCS is growing rapidly. Can you give us any data to illustrate this?

 

EC: I am quoting Dr J Fernández-Solà (an Internal Medicine specialist from the Hospital Clinic in Barcelona) who, in an interview that was done with him at the beginning of this year for an article on MCS in the Spanish magazine, Interviu, said that the amount of patients who were seeking medical help for this illness is growing rapidly. In his hospital, each year, they get between 50 and 60 new patients. That means one new patient a week.

 

LA: What symptoms could make one think that they have this illness?

 

EC: Perhaps the most common symptom is noticing unbearable smells which one did not notice before. One stops tolerating various chemical agents like cleaning products, perfumes, tobacco smoke, car emissions, etc. When you have MCS and you are exposed to these chemical agents, a series of symptoms are triggered automatically like choking, irritation of the respiratory tract, tachycardia, headaches, mental confusion, dizziness, nausea, diarrhea, extreme fatigue, and/or pain.

 

These symptoms don’t get better until you cease contact with the chemical agent that produced them. You may also stop tolerating alcohol, dairy products, and gluten. You may develop intolerance to various foods and medications. Often there are other environmental intolerances: to heat, to cold, to noise, to sunlight. and to electromagnetic fields (computers, high power lines, telephones, cellular phone antennas, microwaves, etc).

 

LA: What differences are there between MCS and, let’s say, Fibromyalgia?

 

EC: MCS, Chronic Fatigue Syndrome/Myalgic Encephalitis (CFS/ME) and Fibromyalgia (FMS) are illnesses in the same family. In fact, many who have MCS actually have all three illnesses.  More and more people with CFS/ME and FMS over the years also develop MCS.  These conditions share many of the same symptoms, though the biggest difference is that those with MCS do not tolerate even the smallest exposure to chemical substances and must maintain strict environmental control and use a mask with a carbon filter to filter out the environmental toxics in the outside world.

 

LA: What medical treatment does a person with MCS receive from the Spanish health care system? Do you think it is adequate? Do you think it is fair?

 

EC: In Spain, MCS is not recognized as an illness and so health workers and the general population are not aware of this serious pathology. Instead, countries like Germany, and recently Austria and Japan, have recognized it and other countries are on their way to doing so. Each offers health services to those who have MCS and are establishing protocols for prevention. In Spain, there are hardly any doctors in the public health care system who can diagnose this illness and it is very hard to get a diagnosis and even harder to get treatment. I am convinced that there are a lot of people in Spain who have MCS who are not diagnosed.  Sadly, many end up in the hands of psychiatrists because of the lack of knowledge doctors have. Also there are no protocols nor policies on “free of fragrances” for our hospitals and public buildings, so going to the hospital means getting sicker.  In Spain, people with MCS do not have health care services, do not have the right to economic help to adapt to the disability, and do not have the right to a pension when they can no longer work. I don’t just see it as unjust.  I think the improper treatment is a violation of a patient’s constitutional rights.

 

LA: But, isn’t it a bit of a contradiction the fact that the European Parliament considers MCS an environmental illness and that in Spain, the central government and the regional governments look the other way?

 

EC: Of course it is! It is all with the excuse that the WHO has not yet recognized it as an illness. This does not mean that it does not exist!  The decisions that are taken at a bureaucratic level do not make patients disappear by magic. They use this argument to discredit the illness when it is really a conflict of interest to recognize it. They will tell you that there are no specific biomarkers for MCS, but that is not uncommon in other illnesses which are well recognized.

 

LA: What percentage of the population is it thought to be affected by this illness right now?

 

EC: According to the 2007 study published by doctors from the Barcelona’s Hospital Clinic, J. Fernández-Solà (Internal Medicine) and S. Nogué Xarau (toxicologist), 5% of the population has MCS. They specify that: “More than 15% of the general population present mechanisms of excessive response when faced with a chemical or environmental stimulus.“

 

In 5%, these processes are clearly pathological and are above the organism’s capacity to adapt.  So, it results in skin, respiratory, digestive and neuropsychological manifestations, frequently chronic and persistent.  If MCS affects 5% of the population, it cannot be considered a “rare disease,” which are the ones that affect less than 0.0005% of the population.

 

LA: Are you speaking about the Spanish population or are you thinking in European or world terms?

 

EC: I am talking worldwide. It is considered an illness of the industrialized world. In countries where there are statistics about this illness, like in Canada, we see that the amount of people that have MCS is not small. According to the Environmental Health Association of Quebec, there are four million people with MCS in Canada.

 

LA: And do we know the causes? MCS, as you have said, is a disease related to environmental factors. What does that mean exactly?

 

EC: Studies say that the cause is the toxics in the environment we are exposed to. There are two ways of developing MCS: from one single exposure to toxics at a high dose or by several exposures to small amounts over the years. There are toxic substances in the air we breathe, water we drink (in the plastic if we drink bottled water), clothes we wear (formaldehyde, dyes, traces of pesticides), cleaning products, beauty products, food we eat (pesticides, additives and artificial colors which have been banned in the USA for many years for being cancer causing), and in silver dental fillings (which have mercury). Over the years, our body accumulates all these chemical substances which circulate in our environment without any controls, substances which we must remember have been in use so many years until the toxic load becomes unbearable and we end up getting sick.  According to our genetic make-up, it could end up being MCS. But other people do not get off scott-free because they will end up developing cancer, asthma, allergies, autoimmune diseases, or any other illness of environmental origin. Even doctors complain that there is no funding for researching MCS, that no one wants to fund MCS studies, because studies normally are funded by pharmaceutical companies so they can develop a medication, that is, for their own profit.  But as MCS patients do not tolerate most medication, they are of no interest to them.

 

LA: But, what sense does it make to know all this and not take any measures? Why do we keep using these products if we know of their toxicity and of the high risk their use entails? It is not an ideal situation that you describe. Why do we not put some order in this toxic chaos?

 

EC: That is a good question. It does not make any sense to not take any measures and to keep on using these products. If health authorities do nothing, the option is to stop using these toxic products and it will have to be us who take charge of things. In the labels on the fabric softener, the beauty products, the perfumes. or the air fresheners it does not say: “Warning, this product is toxic and it will keep accumulating in your body until it causes you Multiple Chemical Sensitivities.”

 

No one warned me. That is why I try to share all that I have learned  since I got sick four years ago, so that people will know what we are not being told. For example, it is so hard to regulate tobacco that all this will surely be harder because we are not talking about one product. The problem is more than that. Has everyone forgotten that in the 1960s medical reports were hidden or changed, reports that showed that tobacco caused cancer? What is happening is nothing new. Power is not in the hands of politicians. It is in the hands of the multinationals.

 

LA: Describe, briefly, the life of a person with MCS. What measures does the person have to take? What treatment does the person have to undergo?

 

EC: The treatment is basically one concept: Environmental Control. Environmental control is to basically avoid any exposure to toxics or chemical substances as much as possible.  The basic points are:

 

  • Eat organic, non-processed foods (normally it is recommended to avoid dairy products and gluten).
  • Filter all water, including drinking water, cooking water, and water fo showering.
  • Substitute all beauty and cleaning products with ecological ones without fragrance. Logically, one must stop using colognes, air fresheners, laundry softeners, etc.
  • Use ecological clothing that does not have any dyes nor toxics.
  • Get an air filter.
  • Buy furniture and mattresses that are made of ecological materials that have not been treated with chemical.  And when you paint the house, it must be ecological paint.
  • Avoid or minimize exposure to electromagnetic fields.
  • Use a carbon-filter mask when you go outside or in situations in which there are a high concentration of toxics.
  • Try to live in an area which is the least contaminated as possible and in a house made of non-toxic materials.

 

As you can see, environmental control involves a high financial cost, for which we have no help and is almost impossible to carry out.

 

Besides environmental control, which is also beneficial for healthy people, there are personalized treatments. These involve nutritional supplements, saunas, oxygen therapy, etc. Each person with MCS is different and also some people have other added illnesses. Therefore, one has to have a lot of tests done to determine what is best in each situation. In Spain, none of this is covered by the public health care system. Those of us with severe MCS can barely leave the house. Our lives are reduced to our house, which becomes a prison in which most of us cannot even do any housework. In some cases, we spend most of the day in bed and rely of family members for almost everything. The contact with the outside world is reduced to talking on the phone, those who have energy to do so, the odd visit from people who are willing to change their washing and cleaning habits, and through Internet for those of us who do not have severe cognitive or electromagnetic problems.

 

LA: What government help does a person with MCS receive? It does not seem possible for someone so sick to go to work. How can you organize your home if your family does not have the available time?

 

EC: We get no help when we have MCS. Even the masks, without which we cannot survive, we have to pay for ourselves. This is the economic drama that goes along with this illness. When one has severe MCS, one cannot work.  But, if one has mild MCS it is not possible either because no employer is willing to adapt the work place so that a person with MCS can continue working. In some cases, some people get disability, but usually it involves going to court. We must remember that there are young people who get sick who have not worked long enough to have the right to a pension. What is their future? I always say that I am amazed that there is not more depression amongst people with MCS. Who would not be depressed in such a hard situation? One can try to get disability, but the amount of money that one gets is very small, depending on the scale of severity recognized. In my case, I am lucky to have my husband’s and my mother’s help, because I am so severely ill that I cannot do anything in the house, nor even cook for myself. Even if I had the money to pay someone to come and help me at home, that would not be possible. Just to be able to have my mother come over, she has had to change all her washing and cleaning habits as well as showering herself before coming.

 

LA: Why do we hear so little about Multiple Chemical Sensitivities? What is behind all this? What is behind this silence?

 

EC: Yes, there is something hidden behind this silence: the interests of the chemical and pharmaceutical industries not to have it known that their products cause terrible new illnesses like MCS. Recently it has been proven that MCS is not psychological and that studies that were done in the past which said that it was psychological were manipulated in order to protect the interests of the chemical and pharmaceutical industries.

 

Unfortunately, it is very easy for the government to ignore us, as most of us live under house arrest and we do not have the strength to organize ourselves. It is clearly an abuse of power. Only our families, friends, and neighbors know we exist and how hard our everyday life is. But, despite the seriousness of our situation, we are many and more every day who fight from our homes and through Internet for our rights and try to make MCS visible.  We share information to help each other out, as our government does not help us.

 

LA: You talk about studies that were altered that “showed” that MCS is a psychological illness in order to preserve the interests of large corporations. Were they blinded by the color of money? Can you give us an example?

 

EC: On September 2008, the magazine Journal of Nutritional & Environmental Medicine, published a study by Goudsmit and Howes entitled “Is multiple chemical sensitivity a learned response? A critical evaluation of provocation studies.” This study showed that MCS is not a psychological illness and that its origin is tied to chemical substances. I translated to Spanish the article that MCS America dedicated to this study:

 

 

 

 

 
They suggested that MCS was a psychological condition related to expectations and prior beliefs, a position which both the chemical and pharmaceutical industries worked hard to imply as it would eliminate their chemicals from being a liability and promote the use of profitable psychiatric drugs in the absence of drugs that could negate the effects of environmental pollution.  Since the majority of chemical and pharmaceutical companies share the same ownership, this position was promoted vigorously and skillfully through industry controlled journals.
 
Fortunately, these bogus studies were re-examined by Goudsmit and Howes using additional scientifically accepted criteria.  The studies promoting a psychological basis for MCS were found to be grossly misleading due to numerous methodological flaws and shortcomings.  They determined that MCS is more closely linked to exposure to chemicals than to disorders such as anxiety, somatoform disorders, and depression.”

 

LA: One of your articles is entitled “We are born naked” and it has had a great repercussion amongst people with MCS and other people interested in the topic. Why? What was this article about?

 

EC: I wrote the article for the on-line cultural magazine Delirio, which exposed the total neglect and abandonment that people with MCS, suffer and makes a special point on the situation in Spain. “We are born naked” had  two photos of me wearing only a mask,  which caught the attention of MCS associations in other countries and resulted in it being translated into nine different languages. The reason for its success is that people ill with MCS all over the world identified with the situation we live with in Spain. Unfortunately, even in countries where MCS is recognized, people with this illness are abandoned and silenced because economic interests are considered before health. In the next [issue] of Delirio, dedicated to the topic of silence, there will be another article on MCS. They have asked me to explain the success of “We are born naked” and that way we continue to educate people about MCS. We are the “canaries in the mine.” We are the warning of the disaster which is coming. We are the evidence that the actual model of society has failed, although no one wants to admit it nor pay for it, nor do anything about it. For all this, they want to silence us.

 

LA: Disaster that is coming? What disaster? Why has the actual model of our society failed? Is this because of the illnesses it generates? Tell me about a more humane model.

 

EC: The cases of MCS are increasing rapidly and affecting younger and younger people. Each day there are more children with allergies, asthma, celiac intolerance, etc. The cases of cancer are multiplying and are appearing in families with no cancer history. There are constantly new studies that show the relationship between chemical substances and electromagnetic radiations with certain cancers or an increase in allergies. If something is not done, the future that awaits us is not that of a healthy society. I, like other people with MCS, are the proof that this society has failed.

 

When I was little, I use to think that the government looked after us and that if something was sold, it was because it was safe. I could not have been more wrong. The air quality in cities like Barcelona or Madrid is scandalous. Our food is full of pesticides with all kinds of additives and they are allowing the use of transgenic modified foods. They let us get sick and then they abandon us with no help, with no health services as it has happened to me. You study and get a degree, you have a good professional career, and when you are supposed to begin to enjoy your life, it is all over. Is that a Welfare State? Measures have to be taken to stop putting the economic interests before health. Chemical substances and electromagnetic radiations should be banned and regulated. Transgenic modified foods should be banned. Organic farming should be encouraged as well as alternative energies. There is an infinite number of measures to be taken, but the important thing is to change the direction and to start before it is too late.

 

LA: You have written a book, a magnificent book, entitled Missing. Why Missing? Where have you disappeared from?

 

EC: Thank you for praising my book. As a new writer, it is an honor.

 

LA: The honor, dear Eva, will be that of the readers, I can assure you.

 

EC: I thought of the title when I read the great introduction to my book that Clara Valverde has written (she is a writer, president of the Liga SFC- CFS League- and lives with Chronic Fatigue Syndrome). It was then that I realized that a lot of people might think that I disappeared from the face of the Earth. I went from having a job with a lot of responsibility in a bank, going to the gym every day, going to rock concerts, going out with friends and sharing holidays with my family, to being locked up in my house to be able to survive. Seen from the outside my immediate group, I am missing, kidnapped by MCS. The outside world is toxic for all. But for those of us who have MCS, it is to the point that we cannot go out without a carbon-filter mask that protects us from harmful chemical substances and, in some cases, the severity is such that even with a mask we cannot go out. I am sentenced to live within my four walls because they have not taken measures to ban chemical substances that, in me, set off a crisis and in other people makes them develop an environmental illness. It is not normal that every day we hear of a cancer death. Does no one care that this society is sicker every day and that this is not sustainable?

 

LA: Finally, how should society and the health services act regarding these new illnesses? Are they really new? Can you suggest some basic ideas?

 

EC: As I was saying before, MCS it not really new as the first cases were reported in the 1950s. We cannot use the idea that they are new as an excuse in 2009 to justify that nothing has been done. At an international level, the first thing should be that the WHO recognize MCS once and for all as an illness. But until this happens, our country should recognize MCS, following the example of other European Union countries. Also they should train doctors and adapt the health services for MCS.

 

All this would also mean that we should have access to disability pensions and other support to be able to adapt to our illness.

 

Right now, when people with MCS get sicker because of their illness or because of another illness they might also have, they do not have anywhere to go because there aren’t any hospitals that are prepared for them and health workers do not know about their pathology. That’s how serious the situation is. It is also necessary to put into place prevention policies such as “free of fragrances” in hospitals and public buildings, and to control and ban certain substances. All this would be beneficial for the health and well-being of all citizens, not just those of us who have MCS. And, obviously, there should be put in place a public education campaign so that people can learn about MCS as a disability. When you go out on the street with a mask, you leave yourself open to all kinds of mocking and abuses and this is unacceptable. There are people who are ill who do not even get any support from their friends and family, all because MCS is not recognized. We are not asking for special treatment, but rather adequate treatment for the problems that this illness creates.

LA: What you are saying and asking for is very reasonable. Thank you for your words. Would you like to add something else?

 

EC: Yes. I would like to share that making my situation public as I do through my blog and now even more through my book, I could serve as a warning to all those who are still healthy. Perhaps they think that because they do not have the genetic predisposition to MCS, that they are safe and cannot get sick like I did. But this is not so. As I have told you, the chemical substances that cause MCS, also provoke many other illnesses. Also, we can and should live in a different way, a way without so many chemical products which would be good for our health and also for the environment. We must change before it is too late and the change starts with each one of us because as consumers we have a lot more power than we think.  If there is no demand, then there is no offer.  And to end, I would like to bring up a paragraph from my article “We are born naked”:

 

“Those of us who live with MCS would like this illness to be recognized; we would like to have the same rights as other chronic patients; we would like society to know of the risk it is in; we would like the government to protect its citizens and to help them prevent getting sick unnecessarily. We don’t want anyone else to feel naked because of having MCS.”

 

This interview was first published in Rebelión. Translated into English by Clara Valverde, President of Liga SFC. Reprinted with permission of Eva Caballé.

 

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Walkup Talks Disability   Representing Your Claim

 

One question people always have is whether or not to retain a representative on their disability claim, and if so, when in the process is the best time to do this.  They may also want to know if it is best to get an attorney or a non attorney, and if they should hire someone in their immediate area or someone from a national firm.

 

Anyone is allowed to serve as a representative in a Social Security disability or SSI claim.  Only attorneys and those representatives who are certified by SSA can get direct payment of their fees, however.  Others have to be paid directly by the client.  Attorneys are automatically allowed to both represent claimants before SSA and to obtain direct payment of fees.  Other people who wish to have withholding and direct payment of fees have to take a national test and be certified by SSA. 

Attorneys can practice before SSA in all 50 states so long as they are a member of the bar in any one state.  Other representatives can likewise practice in any state.

 

One advantage of hiring an attorney rather than a non attorney is accountability for malpractice.  Attorneys will generally have malpractice insurance, and this can be verified by checking with the bar association that registers attorneys in the state or states in which they are licensed.  Non attorneys have no such insurance. 

 

Another advantage of an attorney is the training they receive in the practice of law, which is readily transferable to SSD claims, and their years of experience in the court systems.  There are no training programs as such for non attorney representatives, although some of them are trained as vocational experts, nurses, paralegals, insurance claim representatives, etc.

 

If you do hire someone, be sure that you find out exactly what their experience is in Social Security disability claims, and possibly in the area of your particular impairments as well.  When it comes to MCS, most attorneys, even those who specialize in disability claims, often have little experience.

 

My website www.MCSLegalHelp.com

contains a list of “Ten Questions To Ask Your Lawyer”, which can give you further guidance.

 

When to get a representative

 

Many people who consult representatives before they are at the hearing level are told to call back when their case gets to that point.  In MCS cases, however, it is my feeling that the sooner in the process you talk with someone, the better.  There are many pitfalls that you can get into in filling out the application and other forms, going for medical examinations, and getting reports from your doctors, not to mention seeing other doctors who may be more specialized and knowledgeable about MCS and getting more specialized testing performed.  Also, the longer you are seeing a doctor before the hearing, the more weight is attached to his or her opinion, so it pays to get on the right track with the right doctors as soon as possible.

 

As I discussed earlier in this series, just going for medical appointments and/or the Social Security offices may be problematic for MCS sufferers, and we try to work out accommodations for each of those things for you before you agree to go. 

I therefore recommend that MCS clients get in touch with me before they even make the application, or maybe while they are still working and trying to get accommodations from their employers.

 

National or local

 

Every major city will have dozens of lawyers and other representatives who advertise their availability for Social Security disability representation.  There are also a few “mega-firms” that advertise nationally.  Some of those are law firms and some are not.

 

 One of them advertises that they are “America’s Most Successful Social Security Advocates”. When questioned about this they say it is based on the fact that they have won more cases than anyone else. I suppose that is true in the sense that if you handle more cases than anyone else, you will win more cases than anyone else.  It also means that you will lose more cases than anyone else, so they could just as accurately be called “America’s Least Successful Social Security Advocates.” 

 

My experience has been that even with lawyers who are well versed in Social Security disability and have many years of specialized practice, MCS cases are still a rarity.   I have seen the results of many hearings where it appeared to me that the attorney did not understand MCS and was trying to dance around it using psychological impairments or confusing it with “allergies”.  It is my view that you have to be up on the science in this field to make up for the lack of understanding of most mainstream doctors.

 

What the large national firms do is to assign your case to a clerical person to work up and get the medical reports and records.  Then, when the case is ready for a hearing, they try to find a local attorney in your area to handle the hearing and ship them the file a short time before the scheduled date. Usually they do not pay the local attorney very much so they tend to get new lawyers who are trying to break into the business. 

 

To the extent that this may or may not work for the more regular types of disability claims, I think it is ill suited in particular for MCS cases for the reasons stated above.  Some of the national advertisers are not even attorneys and some of them are tied in with long term disability insurance carriers from whom the client is referred.  The client is told that if they use this firm, they will not be charged a fee.  However, this is deceptive as if they get an independent representative, the fee charged will be deducted from the amount of retroactive benefits that has to be re-paid to the insurance company anyway, so there is no charge to the client either way. 

 

The disadvantage here is that the SSD representative is not independent of the insurance carrier. 

 

This comes into play where the insurance carrier decides to cut off the claimant after two years when the definition of disability in the policy shifts or when exclusions kick in.  In particular, there are usually exclusions in employer sponsored disability plans for conditions caused “in whole or in part from mental impairments”, and sometimes for conditions which are “self reported”.  The policy is then limited to two years of payments.

 

If someone who has been getting insurance payments for less than two years is referred to a company for representation on a Social Security disability there is an incentive to try to categorize the claim as involving a mental impairment so the insurance company can bail out.  Even if they do that, they may still have the temerity to ask for repayment of the retroactive benefits that overlap and the representative may counsel the client that they have to make the payment.  (I tell them to blow it off and let the insurance company come after them while we appeal the denial).

 

Bear in mind as well that there are really no ethical constraints or obligations towards you when you are represented by non attorneys, whereas the attorneys are monitored by their state bars and can be sanctioned. 

 

Big vs. little (The Zen of Law Practice)

 

While I am on the subject, I wanted to say something about “big” versus “little” in terms of law firms and others practicing in this area.

 

I was one of the pioneers in attorney advertising in my state, having worked at a legal clinic which actually advertised before it was legal to do so to try and prompt a court challenge on the historic restrictions to lawyer advertising. Someone else beat us to that, however.  In those days, advertising was new and mostly in print, and you could do it for a reasonable amount of money. 

 

Another barrier was broken when lawyers started to advertise on TV. This upped the stakes and increased the costs exponentially.  My experience is that the quality of the services you as a client may receive may tend to be more or less inversely proportional to the amount of advertising the firm is doing.  It’s simple economics.  If you are spending a large amount of money on advertising, you have to have a large practice to support it, and you have to cut costs in other areas to make up for the advertising expense.

 

This is particularly true in Social Security representation where the fees are limited.  You don’t get any “windfall” cases like in personal injury where you can potentially make a lot of money on one case to offset the more modest returns elsewhere.

 

One way that you cut costs is to set up your practice basically as an “assembly line” where you have clerical people do most of the work and then hire cheap recent law school graduates or others to do the actual hearings with little preparation time.  I’m not saying that everyone does that who advertises a lot, but the economics of that type of practice are what they are. 


The internet has changed that somewhat.  We are now able to focus our marketing to certain niches and keep the overhead from becoming unbalanced with large traditional advertising costs.  This allows us to maintain a lower case load and give more personal attention. In some situations, like my own, we can even practice out of our homes and reduce the overhead further, thus allowing more attorney time to each case.  It’s what you net, not what you gross.  Less is more.

  

This has been my last installment in the 12 part series on disability law as it relates to MCS claims.

 

Readers are referred to my website, www.MCSLegalHelp.com, for more information. 

 

Thank you,

Michael J. Walkup

Attorney

 

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Time to Look at Your Home in a Different Light

Basements, Part 1

 

Intro

 

For many people who have had MCS for some time, they have slowly made their living space their sanctuary. For those who are newly diagnosed, things are going to be different, and need to be for you to stay as well as possible. That means looking at your home in a different light. This series of articles will walk through the kinds of elements that I look for in a healthy house, and where the potential problems lie within a home. We will focus on the sneaky things that you may have missed in your own process as well.

 

Basements

 

One of the silliest places that humans live is below ground. It’s something we did way back in the days of us living in caves and hiding out from saber tooth tigers. Luckily we’ve gained some insights into life and living, like running away from tigers and other bad things that we come across, for example.

 

Unfortunately, the concept of living in caves has stuck with us as some primordial sense of safety. Basements are, however, far from that truth.

 

The history of basements is relatively simple. We started out with cold cellars where we stored our rutabagas in hopes that they would grow mould so we wouldn’t have to eat them. That worked well since the cold room was cold, wet and full of moisture in the air. Next we found these new fangled furnace thingy’s that ran on coal and we needed a place to store this stinky, sooty coal, so we figured the basement was best and it now became the coal cellar. Still the rutabagas grew mould even under the coal dust, and so the story continues. Next our houses became bigger again, and we needed a place to put the noisy kids, so we dug out the basement even farther and laid down some carpet and old furnishings, and tossed the kids into it. They still don’t eat rutabagas and the basement is still cold, wet and full of moisture in the air. For those of you who have a dirt crawlspace under your home, go back a step and remove the coal furnace, and you are there in spades.

 

The challenge with this type of construction is that when you dig a hole somewhere it wants to fill up with water. This is amplified by a few different elements.

 

First, the relative humidity of soils typically is about 100% RH. This means that soil is really wet. Not always physically soggy or muddy, but the moisture content in the air spaces between the soils are very high, at maximum capacity.

 

Now everything in the universe wants to be at equilibrium, so if it’s 100% RH on the outside of your basement wall, and 45% RH on the inside, the moisture wants to be equal, so there is a drive, a push a force that moves the water from the soil to your basement. This is called diffusion. Think of an orange and how when someone peels it across the room you can smell it instantly. That’s because the orange molecules want to be at equilibrium in the room, and spread out throughout the space. Ditto with the water on the other side of your basement wall, it wants to be at equilibrium and passes through the concrete, which can move water very easily because it is very hygroscopic.

 

Hygroscopicity is the ability of a material to suck up moisture in a liquid or vapor state. Concrete is really good at that. It is filled with little tiny tubes inside the concrete and they are called capillaries, like veins so to speak. These capillaries can suck up water because the water molecules bond to the walls of the capillaries. There is enough capillary action to pull water in concrete straight up to almost 1 kilometer (.62 miles) in the air! This is an incredible amount of suction power.

 

So, if you think that just because there is a little water in the corner of your basement, your wood structural members on top of your concrete wall are safe, think again. It is very important that these are separated from each other with some sort of gasket, because that water is always present, and always moving through the concrete. Typically anything newer than 1970’s construction has some form of gasket between the concrete bits and the woody bits. I’ve seen it earlier from good quality construction, but it’s rarer.

 

The other challenge with basements is the leakage of air into them from the outside. We all know that hot air rises and cold air falls, right? Well the outside air in the summer is pretty hot, and your basement is pretty cold, in comparison. It’s colder due to the earth’s relatively stable temperature, which keeps the basement cooler than upstairs. 

 

The air that is being blown around by wind and it’s pressure outside hits the walls of your house on the windward side, and is sucked into your basement. This happens because the two temperatures, just like the moisture content in the air, want to be at equilibrium.  So, the hot air wants to heat your basement, and the house’s stack effect pulls it in, which is the ability of the house to act like a chimney.

 

Since the cold air is more dense that hot air (hot air expands and becomes buoyant), the air in the basement is under negative pressure or to put it another way, the air in this space is being sucked into the house, while the air at the top of the hot house (that acts like a chimney) is positively pressurized and is trying desperately trying to escape out the top and leeward side through cracks and holes. The amount of air escaping is equal to the amount of air being pulled in at the bottom and windward side.

 

Most of us are concerned about the energy efficiency side of things, but this is also a major air quality issue, as the air is coming through cracks in the walls, floors, joints and other places that no one cleans. This means the air is dirty, dusty, and potentially moldy coming into the space, which is then just warmed up and moved through the house. If that doesn’t sound good for you, it isn’t.

 

We have two different forces acting upon the basement.  We have the moisture drive from the soil, which is coming at us from the walls and from the floor. The walls are mostly from precipitation working it’s way into the soil and then into the walls, while the floor moisture source is typically from the water table below us rising up, as it is a dynamic stream of water moving and changing. Both sources add moisture to the basement that can negatively impact the space.

 

Secondly we have the air being drawn into the basement through the leaks, cracks and holes that is dirty and unfiltered, creating now poor air quality, with potential moulds in the air, and mixed up with some moisture from the soils around us.

 

Finally all we do is add some carpets (sponges) and some old furniture (dusty, dirty, and breaking down chemicals) into the mix, stir it up with some high energy kids, and we have all the fixin’s for some really poor air quality.

 

In the next article we will talk about how to make the basement as healthy as possible. Now that we understand the science of what is going on, it’s significantly easier to take control and improve the situation as best as possible.

 

Stephen Collette is a Building Biology Environmental Consultant and LEED accredited professional, who owns Your Healthy House, and is living with his family in Lakefield, Ontario.

www.yourhealthyhouse.ca

705-652-5159

stephen@yourhealthyhouse.ca

 

Stephen Collette is a Certified Building Biology Environmental Consultant (BBEC). This lengthy certification analyses the built environment and how it impacts people’s health. Stephen was a natural builder for 5 years specializing in straw bale construction. Stephen has an engineering background and training which enables him to understand the various processes occurring within the home and how they can interact. Applying these skills and knowledge to the standard home and small office enables Your Healthy House to find the reasons for poor indoor air quality and to create solutions to help create your healthy house.


Stephen Collette is a Leadership in Energy and Environmental Design - Accredited Professional (LEED AP), which allows Stephen to use the Canada Green Building Council’s guidelines and method to ensure a quantitative approach to building green.

 

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Formaldehyde Linked to Asthma

 

There is a significant association between formaldehyde exposure and childhood asthma according to a recent scientific literature review by researchers Gerald McGwin, Jr., Jeffrey Lienert, and John I. Kennedy, Jr.


Roughly 7% of adults and 9% of children suffer from asthma in the U.S.  Seven peer-reviewed studies examined data showing an association between formaldehyde exposure and asthma in children.

 

Many products in the indoor environment emit formaldehyde, including particle board, urea formaldehyde insulation, carpeting, and furniture.  Clothing is also treated with formaldehyde.  Mobile travel trailers provided by the Federal Emergency Management Agency (FEMA) to displaced Gulf Coast residents have also been shown to contain excessively high levels of formaldehyde.

 

Exposure to formaldehyde can cause irritation of the eye, nose, throat and skin.  Chronic exposure, such as that experienced in the home from treated furniture and carpets, has been linked with cancer and asthma. 

 

“The results of this study provide important evidence regarding the potential causal link between formaldehyde and asthma in children, says McGwin.  

 

Protect children from formaldehyde exposure next to the skin by buying organic and untreated clothing.  Wrinkle resistant, stain resistant, and permanent press clothing are treated with formaldehyde and other potentially toxic chemicals.  As a simple test on new clothing, fill a spray bottle with water and spray a bit on the garment.  If it absorbs, the formaldehyde level is low.  If it beads up and does not absorb, the formaldehyde level is high.

 

Most furniture is sprayed with potentially toxic chemicals to resist mold, wrinkles, and stains.  Fire retardants are applied as well.  Look for organic and untreated furniture.  Press wood generally contains a high amount of formaldehyde.  Consider metal and stainless steel options and sew your own cushions. 

 

Bedding which has not been treated with fire retardants can only be purchased in the U.S. with a prescription from a doctor or chiropractor.  If a prescription is not obtainable, consider an untreated mattress wrapped in wool, which meets the fire retardant laws in most states. 

 

Formaldehyde can also be found in some childhood vaccinations.   Check the ingredients before vaccinating.  There are often other brands which may have little or no formaldehyde.

 

Reference

Gerald McGwin, Jr., Jeffrey Lienert, and John I. Kennedy, Jr.  Formaldehyde Exposure and Asthma in Children:  A Systematic Review, Environmental Health Perspectives. doi: 10.1289/ehp.0901143 .  6 November 2009.

 

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Preying on the Desperate

Miracle Cures Hold False Promise

 

Authors:  Lourdes Salvador & Linda Sepp

 

The History of Health Scams

 

People with incurable illnesses are often the target of miracle cure scams. These promises usually involve the marketing of unproven cures for a fee. Often the cure is easy and painless and the aggressive marketing is loaded with lucrative testimonials and success stories in bold fonts and bright colors with flashing text and lots of exclamation points.

 

They come in the form of websites, word-of-mouth, multi level marketing, e-mail marketing, printed ads, mail, telemarketing, and the backs of traveling wagons.

 

The danger is not merely the wasting of time and precious money to purchase these cures.  In addition, these miracle cures often delay appropriate medical care.  Some may even be harmful or interact with prescription medications in a negative way.

 

These scams are often widely touted by the chronically ill because they offer false hope.  When one is sick, scared, in pain, and desperate for relief, the promise of being cured is easy to grasp onto. However, the pain of being duped and realizing it was only false hope can be devastating.

 

Ten Warning Signs of a Scam

 

The Promise Of A Quick And Easy Cure

Presents Unproven Patient Testimonials & Emotional Appeals Instead Of Science

Claims To Cure Many Ailments Which Have No Cure In Medical Science

It’s Not Sold In Stores

It Has Undisclosed Ingredients Or Content

You Have To Keep At It To Get Results

It Doesn’t Work Because You Did It Wrong

Science Hasn’t Even Bothered To Discredit It (No Threat To Pharmaceutical Sales)

The Seller Lacks A Medical Degree Or Similar Qualification

It’s Too Good To Be True

 

Targeted For A Scam

 

Chronic fatigue syndrome (CFS), fibromyalgia (FM), and multiple chemical sensitivity (MCS) are debilitating illnesses which have no cure and leave sufferers lives in ruins. Even those with the best ability to adapt and cope often suffer from the abuse of other well-meaning people who think the ill somehow brought these illnesses upon themselves or that the illnesses don’t really exist.  This can create a situation of desperation in which a patient is willing to try anything to get better.

 

Another thing that creates desperation is a persons unwillingness or difficulty to accept a change of circumstances, such as what occurs when a person with MCS must avoid contact with everything they once believed was safe. Life as it was known no longer exists.  Friends, family, home, and career plans are all drastically affected. If a person has trouble accepting the new reality and isn't willing or able to create a new life within this new set of circumstances and limitations, desperation can set in.

 

CFS has had its share of miracle cures.  The recent discovery XMRV Retrovirus has led to the potential that this virus is the cause of CFS.  Many CFS patients have been delighted with this news because it gives their illness long-awaited legitimacy.  Still others are not so happy, believing that the drug companies may be behind this discovery with nothing more than intent to market a profitable new drug.  Irregardless, in the face of emerging viral evidence, XMRV is now a newly emerged threat for purported cures.  

 

People with MCS are also coerced into unproven treatments. Often, these treatments consist of over-simplified and unsupported views on a single barely-relevant component of a vastly multi-dimensional illness.  These over-simplified treatments give false hope and address something that the person can quickly and easily address, such as the amygdala.

 

An Example of a Medical Scam

 

The amygdala is an almond shaped part of the limbic system of the brain.  It is believed to be responsible for regulating emotions and fear responses.  It is also called into action to ‘alert’ a person to dangers, such as a toxic chemical exposure.  Studies have shown that breathing carbon dioxide can trigger panic attacks because the carbon dioxide toxicity alerts the amygdala, generating a fear response… the body’s way of saying, “Get away; you are being poisoned.”

 

Because most people are not aware of the many chemicals around them and many chemicals such as carbon dioxide are completely odorless, the connection between the amygdala’s response and the ‘flight or fight’ panic response is not made on an intellectual level. The resulting panic attack appears to be an irrational fear, when in reality the amygdala is a sensor which functions as an alert to various dangers.

 

In some people, it is possible that fear responses can become exaggerated and turn into a vicious cycle. Since people new to MCS are not informed about all the toxic chemicals in everyday products and materials, they may be given a lot of misinformation about what is really going on.  Articles which claim MCS is a disorder about smells instead of a response to toxic chemicals increase ignorance of the truth.  This can establish a fear of smells in some people, along with inadequate responses to real toxic threats. Through continued exposure to toxic chemicals that injure brain and body processes, the damage becomes more complex both physically and emotionally because more and more biological systems are involved.

 

More than one health scam purports to cure CFS and MCS by retraining the amygdala to eliminate fear. Unfortunately, these scams rely on an overly simplistic view of complex multi-system illnesses… a view which ignores vast biological evidence of reduced liver function, cellular inflammation, oxidative stress, endocrine disruption, central nervous system changes, and other symptoms which result from poisoning and are not the result of a simple panic attack.  The view is so simplistic that it relies on the mistaken belief that MCS and CFS are just fear and completely ignores the biochemical damage done by toxic chemicals… the very thing the amygdala’s alert function is designed to prevent.

 

Therefore, therapies aimed at reducing the sensory action of the amygdala so that it does not alert one to get away before the harmful effect of a chemical exposure cause physiological damage only serves to increase the danger from the harmful effects of these substances.   Fear and toxicity are independent of one another.

 

To date, we are not aware of anyone who has recovered any semblance of a normal life without first making major changes to facilitate healing. Having a safe, non-toxic home where one can avoid exposures is of primary importance. Making adjustments to diet, learning about food sensitivities, eating organic foods, drinking highly filtered water, and using targeted supplements to help repair cellular and other damage is also required.  After these changes, it is quite possible that emotional therapies and amygdala retraining can help the few people who have failed to adapt and cope well with these changes.  But emotional therapies and amygdala retraining won't remove poisons or cure CFS, MCS, or FM.

 

Examining the various amygdala retraining claims, it is easy to see that all ten warning signs of a scam are present.

 

The Promise of a Quick and Easy Cure

People are told a simple brain exercise they can do at home will cure them.

 

Presents Unproven Patient Testimonials & Emotional Appeals Instead of Science

The websites and material abundantly claim cures and provide emotional testimonials designed to give false hope. Materials flash, have capital letters, and brightly colored text to get your attention.  No scientific evidence or proof of cure can be found.

 

Claims to Cure Many Ailments Which Have No Cure in Medical Science

These amygdala retraining programs claim to cure MCS, FM, CFS, depression, anxiety, and a host of other illnesses… none of which can be cured by medical science. MCS, CFS, and FM experiments involving successful amygdala retraining which results in remission cannot be found in the scientific literature.

 

It’s Not Sold in Stores

It’s not sold in stores and it’s not written about in books. The techniques are kept top secret and are often only taught in expensive workshops for a high fee.

 

It Has Undisclosed Ingredients or Content

The nature of the exercises and ‘retraining’ is not revealed until a fee is paid. No doctor would offer a surgery without revealing the full nature of the procedure to be performed, nor should a person be expected to pay for any type of treatment or therapy without knowledge of the procedure they are paying for.

 

You Have to Keep at it to Get Results

The purporters of amygdala retraining say it’s simple and easy and claim they themselves have been cured… instantly or within days. But you will have to keep practicing the technique to get results… often for months they claim.

 

It Doesn’t Work Because You Did It Wrong

After you’ve shelled out money and taken the workshop and don’t get results, you are simply told, “You’re doing it wrong.”  But they often can’t specify anything wrong with your technique, just that you have to practice more or concentrate harder.

 

Science Hasn’t Even Bothered to Discredit It (no threat)

Usually when a complimentary or alternative treatment works, it is a threat to the drug industry and they actively work to produce studies to discredit it in favor of drug based approaches. MCS, CFS, and FM experiments involving amygdala retraining which results in remission cannot be found in the scientific literature.

 

The seller lacks a medical degree or similar qualification.

None of the purporters of amygdala retraining cures hold medical credentials.

 

It’s Too Good to Be True

A simple exercise you do each morning for a short time and you’re cured.  You can stop the exercise once the amygdala is retrained.  After spending hoards of money on testing, doctors, treatments, medications, and other methods, this seems so easy, it can’t be for real.

 

All ten warning signs of a medical scam are present when it comes to curing MCS, CFS, and FM with amygdala retraining. 

 

At its best, such a ‘retraining’ might be useful for the few people who are genuinely fearful or suffer exaggerated amounts of anxiety over their illness.  It may indeed be a great technique to help address the many emotions living with a challenging chronic illness presents.  For this small percentage of the chronically ill and general population, retraining may serve as a good coping technique to deal with the many emotions which arise when illness strikes.

 

However, claiming that amygdala retraining can prevent poisoning by a toxic agent and somehow cure toxicological damage is nothing more than a complete and total scam.

 

In response to amygdala retraining, a respected colleague said:

“All the brain retraining programs are just giant frauds designed to suck money out of the sick and desperate. If you want some real answers to CFS, ask yourself why is it one of the most toxic materials (mercury) in most people’s mouths. Why do we inject it into people with vaccines? I could go on. No one wants to ask the hard questions.”

 

Some people with CFS, MCS, and FM are tired of all the supplements, avoiding places, having to check everything out in advance, and don’t feel that this is a life worth living long-term.

 

Rather than wasting time on miracle cures, it is suggested that people who want to see a change in their lives become politically active and join in campaigns to stop toxic chemicals in everyday products.


Instead of spending hundreds of dollars on promoted cures and the 30 minutes or hour a day meditating on brain changes, donate to groups like the Environmental Working Group (EWG) and spend 20 minutes a day calling your elected representatives and the companies making toxic products and get them to stop poisoning the planet and human life.  The problem of illnesses like MCS would be solved then!

 

No Toxic Chemicals = No Chemical Injuries = No Illness

 

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Vaccine Adjuvant Alters Neurological Function in Rat Experiment

 

Autism is a neurodevelopmental disability characterized by social withdrawal, communication deficits, and repetitive behaviors. Both genetic and environmental factors have been implicated as causes of autism, moreover a high body burden of mercury and other toxic metals from vaccinations and environmental exposures has been increasingly given more attention.

 

Thimerosal is mercury containing vaccine preservative added to many childhood vaccines.  It is widely suspected as a cause of an increasing widespread epidemic of childhood neurodevelopmental disorders such as autism.

 

Now, a new study shows that administration of thimerosal leads to long lasting neurological impairment in rats, specifically by altering the neural process of handling noxious stimuli.

 

Analysis also shows that significant amounts of mercury from thimerosal accumulates in the rat brain and remains long term.  The mercury is not readily cleared, as was previously believed.  Though mercury readily leaves the blood stream, it does not leave the body.  It is now recognized to accumulate in brain tissue.

 

Additionally, this research is supported by various prior studies which show that children with autism suffer from a weak ability to excrete mercury and that the weaker the ability, the more severe the symptoms of autism.

 Now, two new research studies investigating the effects of chelation therapy on the health and behavior of children with autism spectrum disorders have discovered that children receiving chelation to reduce mercury levels had significant improvements.

 

It appears that mercury may produce they symptom set recognized in the autism spectrum disorders as a form of autism.

 

References

 

Adams JB, Baral M, Geis E, Mitchell J, Ingram J, Hensley A, Zappia I, Newmark S, Gehn E, Rubin RA, Mitchell K, Bradstreet J, El-Dahr J.  Safety and efficacy of oral DMSA therapy for children with autism spectrum disorders: part A--medical results.  BMC Clin Pharmacol. 2009 Oct 23;9:16.

 

Adams JB, Baral M, Geis E, Mitchell J, Ingram J, Hensley A, Zappia I, Newmark S, Gehn E, Rubin RA, Mitchell K, Bradstreet J, El-Dahr J.  Safety and efficacy of oral DMSA therapy for children with autism spectrum disorders: part B - behavioral resultsBMC Clin Pharmacol. 2009 Oct 23;9:17.

 

 Olczak M, Duszczyk M, Mierzejewski P, Majewska MD.  Neonatal administration of a vaccine preservative, thimerosal, produces lasting impairment of nociception and apparent activation of opioid system in rats.  Brain Res. 2009 Dec 8;1301:143-51. Epub 2009 Sep 9.

 

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Q&A   How to Block EMF Exposure

 

Q:  What I can do to counteract electromagnetic field exposure to protect my health?

A:  There are several good EMF and electrosensitivity brochures which may be helpful to understand the health effects of electromagnetic field exposure. 

 

Electrosensitivity Brochure by Kato Yasuko
http://mcs-america.org/KatoYasukoElectrosensitivityBrochure.doc


Bees, Birds, and Mankind - Destroying Nature by ‘Electrosmog’ by Ulrich Warnke
http://www.mcs-america.org/BeesBirdsandMankindDestroyingNaturebyElectrosmog.pdf


Electrosensitivity?
  What's that?
http://www.es-uk.info/docs/20080829_es-uk_leaflet.pdf

EM Facts Consultancy:  Wireless Networks (Wi-Fi)
http://mcs-america.org/EMFFactsConsultancyBrochureonWiFi.pdf

The Sunflower Project Electromagnetic Sensitivity Brochure

http://www.mcs-america.org/TheSunflowerProjectEMSBrochure.doc

 

Others may be found at http://www.mcs-america.org/index_files/MCSBrochuresPostersSigns.htm.

 

There are various clothing garments, wall covers, and other devices which may help counteract the exposure.  In essence, a person can create a Faraday cage within the confines of a room in their home. 

 

A Faraday cage, sometimes called a Faraday shield, is an enclosure invented by Michael Faraday, which is made of mesh conducting that blocks out external electrical fields. Various EMF shields can be purchased from stores like this one (nfi):

http://www.lessemf.com/

 

In addition, cleaning up your own home can help to reduce overall exposure.  Here are some general tips from EI Wellspring:

 

Introduction to Electromagnetic Hypersensitivity  
http://www.eiwellspring.org/IntroductionToEHS.pdf

 

How to Measure EMF  
http://www.eiwellspring.org/HowToMeasureEMF.pdf


Electromagnetic Survey of a Home  
http://www.eiwellspring.org/ElectromagneticSurveyOfAHome.pdf


Resources for Electrically Sensitive People  
http://www.eiwellspring.org/ResourcesForEHSPeople.pdf

 

Resources for DC Living  
http://www.eiwellspring.org/ResourcesForDCLiving.pdf


Using Power Strips to Lower EMF Exposures  
http://www.eiwellspring.org/UsingPowerStrips.pdf


Choosing Household Wiring for Low EMF 
http://www.eiwellspring.org/ChoosingHouseholdWiring.pdf


Solar Energy Can Be a Health Hazard 
http://www.eiwellspring.org/SolarEMFHazard.pdf


Low-EMF Computer Set-Ups
http://www.asilo.com/aztap1


EMF from GFCI-Protected Outlets 
http://www.eiwellspring.org/EMFFromGFCIProtectedOutlets.pdf


Cooking Without Getting Zapped  
http://www.eiwellspring.org/CookingWithoutGettingZapped.pdf


Introduction to Low-EMF Cars 
http://www.eiwellspring.org/IntroductionToLowEMFCars.pdf


Advanced Low-EMF Cars 
http://www.eiwellspring.org/Advanced%20Low-EMF%20Cars.pdf


EMF Measurements of Cars and Trucks 
http://www.eiwellspring.org/EMFMeasurementsOfCarsAndTrucks.pdf


How to Build Your Own Low-EMF Telephone  
http://www.eiwellspring.org/HowToBuildYourOwnTelephone.pdf


Simple Telephone Filters    
http://www.eiwellspring.org/SimpleTelephoneFilters.pdf

 

Can a Cell Phone Be Used Safely with a Docking Station?

http://www.eiwellspring.org/SimpleTelephoneFilters.pdf

 

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Chelation Effective for Autism

 

Two new research studies investigating the effects of chelation therapy on the health and behavior of children with autism spectrum disorders have discovered that the children receiving chelation had significant all-around improvements.

 

Autism is a developmental disability characterized by social withdrawal, communication deficits, and repetitive behaviors. Both genetic and environmental factors have been implicated as causes of autism, though a high body burden of mercury and other toxic metals from vaccinations and environmental exposures has been increasingly given more attention.

 

Major sources of exposure to mercury include seafood, mercury dental amalgams, and thimerosal in vaccines.

 

Heavy metal toxicity in autism may be due to either a high exposure or a decreased ability to excrete heavy metals.  Infants are notoriously more susceptible to low excretion because they do not produce enough glutathione. Glutathione binds to toxic metals so they may be eliminated via the liver excretion known as bile.

 

Mercury is often excreted from the body via hair.  Adams and colleagues cite, “children with autism had only 1/8 the normal amount of mercury in their baby hair” and “a significant inverse correlation in the severity of autism and the level of mercury in the hair, suggesting that the children with the weakest ability to excrete mercury developed the most severe symptoms” of autism.

 

Dimercaptosuccinic acid (DMSA) is a chelation agent which binds to and removes heavy metals from the body.  It preferentially binds to lead, but also increase the excretion of other toxic metals, including mercury.

 Adams explains that “a decreased ability to excrete mercury should result in a higher body burden, and that was demonstrated in a study which investigated the effect of giving DMSA to 221 children with autism,” explains Adams, “They found that the children with autism excreted 3.1 times as much mercury into their urine.”

 

In the new studies, the administration of oral DMSA to autistic children led to a dramatic normalization of red blood cell glutathione and greatly improved abnormal platelet counts. Children with autism typically have very low or very high glutathione levels. After treatment with DMSA, glutathione levels normalized within the acceptable clinical range.  Adams states that this is suggestive of a significant decrease in cellular inflammation which may be responsible for the dramatic improvements observed.

  

Overall, DMSA therapy seems to be reasonably safe, effective at removing heavy metals and reducing autistic symptoms. 

 

Adams does caution that DMSA temporarily increases the loss of the minerals potassium and chromium, indicating a need to supplement with these nutrients during therapy.

 

References

Adams JB, Baral M, Geis E, Mitchell J, Ingram J, Hensley A, Zappia I, Newmark S, Gehn E, Rubin RA, Mitchell K, Bradstreet J, El-Dahr J.  Safety and efficacy of oral DMSA therapy for children with autism spectrum disorders: part A--medical results.  BMC Clin Pharmacol. 2009 Oct 23;9:16.

 

Adams JB, Baral M, Geis E, Mitchell J, Ingram J, Hensley A, Zappia I, Newmark S, Gehn E, Rubin RA, Mitchell K, Bradstreet J, El-Dahr J.  Safety and efficacy of oral DMSA therapy for children with autism spectrum disorders: part B - behavioral resultsBMC Clin Pharmacol. 2009 Oct 23;9:17.

 

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Q&A   Scent Strip Advertisements

 

Q:  I’m having a problem with scented ads ruining  my newspaper. The fragrance permeates the whole paper and I have to throw it out.  What can I do?

 

A:  Many publications are startled by the outcry from subscribers when they include scent strips.  Supposedly, scent strips don’t have a smell until they are opened by the reader.  However, the strips are known for leaking powerful fragrances even before they are activated.

 

More progressive catalogues, newspapers, and magazines have a call list for subscribers who want to be notified when there is going to be anything scented in the publication.  Others have a separate scent free edition for customers who wish to receive the ads without the fragrance. 

 

If your publication does not have a scent free list or notification service, request that they start one.  The more that publishers hear from their  readers, the more likely they are to offer scent free options. Or, better yet, they may leave the scents out altogether.

 

Also, write a letter to the advertiser who purchased the scented ad and let them know you are unhappy with it.  Many scent manufacturers will deny their scents escape the sealed scent strips or that they can be unpleasant or have negative health effects, but don’t let this stop you.  It’s important that these companies hear from masses of people, lest they continue to poison the country with their ads.

 

Some points to remember:

 

1.      Fragrances are made from 3,000– 5, 000 unregulated chemicals, 80% of which have not been tested for human safety.

 

2.      Fragrance chemicals have been shown in studies to induce neurotoxicity.  Neurotoxicity increases with repeatedly exposed to fragrance products.

 

3.      Most all fragrance chemicals contain many of the same toxins as in cigarette smoke.

 

4.      Fragrance chemicals are solvent-based and contain formaldehyde, benzene, toluene and phthalates, the hormone-disrupting chemicals that are implicated in birth defects.

 

5.      Fragrances invade the airspace of others without their permission.

 

If each of us were to spend a few short minutes a day calling our elected representatives and the companies making and using fragranced products, we would create a very loud voice towards encouraging them to stop poisoning the planet and human life.  

 

Return to Top

 

 

Resources and Support

 

MCS America Forums

 

MCSA Public

http://health.groups.yahoo.com/group/mcsa-public/

Open to the general public open to discuss MCS, support, ideas, information, announcements, news and activism.  No application is required.

 

MCS America Members Activist/Support

http://health.groups.yahoo.com/group/mcs-america-members-support

This group also fulfills the function of discuss support, ideas, information, announcements, and/or share personal activism like the MCSA-Pubic group, only with a closed membership that requires a membership application.  This group also has the added benefit of being a place where individuals and other organizations and activists can engage in collaborative efforts with MCS America and being recipient to all the news feeds (see MCSA Feeds below).  Members of this group are considered associate members of MCS America.  Members do not operate MCS America in any way, but rather collaborate with the organization and are privy to some internal operations, activities, and events.

 

MCSA Feeds

http://health.groups.yahoo.com/group/mcsafeeds

The purpose of this public access group is to receive daily distribution of news and research studies on multiple chemical sensitivity, chemical injury, environmental concerns, and other related environmental illnesses and disorders.  Anyone can join without an application.  Only the moderator posts to this group. This is not a discussion group.  This group distributes about 15 articles on average each day.

 

MCS Salvage and Share

http://health.groups.yahoo.com/group/MCSA-safer-salvage-and-share

A public access group similar to Freecycle, except it's a free recycling program for safer reusable's geared towards individuals with MCS, CFS, FM, and other related disabilities correlated with the environment.  The purpose of this program is to find, give, and recycle needed "safe" or "safer" items.  All items are exchanged for free. Shipping cost are arranged between donor and recipient.  Anyone can join without an application.

 

Multiple Chemical Sensitivities and Toxic Injury

http://groups.google.com/group/mcs-ti

This is a small non-Yahoo based group open to the general public to discuss MCS, support, ideas, information, announcements, news and activism. 

 

MCS Hawaii

http://health.groups.yahoo.com/group/mcs-hawaii

Open to the general public residing in Hawaii to discuss support, ideas, information, announcements, and/or share personal activism.  No application is required.  This group is currently recipient to all the news feeds (see MCSA Feeds above).  This list is operated in part by a state subsidiary volunteer who resides in the state.

 

MCS Nebraska

http://health.groups.yahoo.com/group/MCS-Nebraska

Open to the general public residing in Nebraska to discuss support, ideas, information, announcements, and/or share personal activism.  No application is required.  This list is operated in part by a state subsidiary volunteer who resides in the state. 

or subscribe at:

 

MCS Michigan

http://health.groups.yahoo.com/group/mcs-michigan

Open to the general public residing in Michigan to discuss support, ideas, information, announcements, and/or share personal activism.  No application is required.  This list is operated in part by a state subsidiary volunteer who resides in the state. 

 

 

Support Forums Outside the MCS America Network

 

4Mom

http://groups.yahoo.com/group/4MOM/

According to Mt. Sinai Medical School, there are many illness' caused by toxic substances such as pesticides. They are studying the role other toxins play on the new childhood diseases triggered by environmental factors. They call this the new epidemic. Mothers of Many is for all parents with children who are ill and are affected by toxic chemicals such as Attention Deficit Disorder, Asthma, Cancer, Autism, Tourettes Syndrome, Multiple Chemicals Sensitivities (MCS), Parkinson's, and any other condition affected.

 

Bay Area MCS

http://health.groups.yahoo.com/group/bayareamcslist/

Classified ads and notices for people with MCS (Multiple Chemical Sensitivity) in the San Francisco Bay Area.

 

CFS CFIDS ME

http://health.groups.yahoo.com/group/CFS_CFIDS_ME/

This Group is to promote friendly discussion about places where people have gone and feel more or less recovered from CFS/ME/CFIDS.

 

Chemical Disability Australasian NETwork

http://groups.yahoo.com/group/CDANET/

A Discussion/Chat/Mutual help list run by and for the chemically disabled.

 

CMCS-EI Christian MCS, CFS, FM, and EI Group

http://health.groups.yahoo.com/group/CMCS-EI/

We are a Christian group who have invisible illnesses like MCS (multiple chemical sensitivity) or Environmental Illnesses like Chronic Fatigue Syndrome ( CFS ), Fibromyalgia ( FM ), GWS, Lupus, Anxiety, etc.

 

Creative Canaries Community

http://health.groups.yahoo.com/group/CreativeCanariesCommunity

This group is an online meeting place for creative artists with Chemical Sensitivities.  We offer connections between - and information for - artists whose (artistic) life is affected by Chemical Sensitivities and the consequences they have.  

 

Detox

http://health.groups.yahoo.com/group/mcs-america-members-support

"Detox" is a group to serve chemically injured, environmentally ill, multiple chemical sensitivity, and related illness such as chronic fatigue, candidiasis, hypoglycemia, lupus, and others.

 

Disinissues 

http://groups.yahoo.com/group/Disinissues/

The purpose of Disinissues is to share experience and advice about the processes of obtaining and maintaining Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), and long-term disability insurance. The group is targeted mainly towards those with invisible disabilities, such as CFIDS and other conditions not on Social Security's Listing of Impairments.

 

EMF Refugee

http://health.groups.yahoo.com/group/emfrefugee/

This ML has been created with the intent of bringing refugees together in countries around the world to form their own EMF-free communities in natural environments where they can heal and create healing environments for the Earth and others.

 

Environmental Illness 001

http://health.groups.yahoo.com/group/environmental_illness001/

This group is dedicated to curing / resolving all issues related to Environmental Illness, including but not limited to: Multiple Chemical Sensitivity (MCS), Multiple Food Allergy, Leaky Gut Syndrome, Candida, Epstein Barr Virus, Chronic Fatigue, Fibromyalgia, Heavy Metal Poisoning, Porphyria, endocrine system dysregulation, etc.

 

eSens - Electrical Sensitivity

http://health.groups.yahoo.com/group/eSens/
Do you feel ill when you're near computers, cell phones, fluorescent lights, or wireless internet? If so, you may have "electrical sensitivity".

 

Gasslist-L (Glutaraldehyde, Aldehyde, and Solvent Sensitivity)

http://www.ncchem.com/snftaas/gasslist.htm

This list has been established to serve persons interested in Glutaraldehyde, Aldehyde, and Solvent Sensitivity, especially  darkroom personnel, radiographers, and diagnostic medical sonographers.  The purpose of the list is to promote internet-wide exchange of research and information.

 

Green Canary

http://groups.yahoo.com/group/GreenCanary

This list is dedicated to a life free from toxic chemicals, and the health problems that they can cause.  Here we can come together and share the information and experiences that have taught each of us a piece of the knowledge necessary to survive and thrive, eliminating unnecessary toxic chemicals from our lives, and replacing them with the elements of health and the alternatives offered by the natural world around us.

 

Immune

http://immuneweb.org/lists/immune.html

This is the list for support and information about multiple chemical sensitivities, chronic fatigue syndrome, fibromyalgia, lupus, multiple sclerosis, porphyria, allergies, asthma, and other immune-related ailments.

 

Immune Parenting

http://groups.yahoo.com/group/immune-parenting/

This list is for both men and women who have Multiple Chemical Sensitivity, Chronic Fatigue Syndrome, Fibromyalgia, autoimmune disorders, or other immune system medical issues--or their partners--who are parents, pregnant, trying to conceive, or who are thinking about parenthood.

 

Live Chat at the Health and Environment Resource Center (HERC)

http://www.herc.org/chat

This chatroom is not associated with any group. It is unmoderated and no password is required. Chat Times: Saturday - 7 pm ET, 6 pm CT, 5 pm Mtn, 4 pm Pac; Monday - 9 pm ET, 8 pm CT, 7 pm Mtn, 6 pm Pac; Wednesday - 8 pm ET, 7 pm CT, 6 pm Mtn, 5 pm Pac.

 

MCS Canada

http://health.groups.yahoo.com/group/MCS-Canada/

This group was formed to assist patients and concerned parties from all nationalities learn to cope with environmental injury, including disorders such as MCS,ME, CFS, FM, Lyme, Lupus, GWS, PPS, as well as related and associated illnesses.

 

MCS Canadian Sources  

http://groups.yahoo.com/group/MCS-CanadianSources

MCS Canadian Sources is a support, information and resource exchange for those living and coping with Multiple Chemical Sensitivity (MCS), Environmental Illness (EI), or Chemical Injury (CI).

 

MCS Photography

http://health.groups.yahoo.com/group/MCSphotography/

MCS Photography is a group for those with multiple chemical sensitivity who capture and share the world and their life through photography.

 

MCS Recycle

http://groups.yahoo.com/group/MCSRecycle/

The objective of this group is to be able to share with each other items that are chemical free and have been used in a non-toxic environment. This group is planet-wide.

 

MCS Safe Shelter USA

http://health.groups.yahoo.com/group/mcssafeshelterusa/

Short-term and long-term housing for people with MCS (Multiple Chemical Sensitivity). Check our database for listings by state. (Please use the two-digit code.) Find rentals, hotels, and housing to purchase.

 

MCS Survivors

http://communityzero.com/mcsurvivors

For those who experience environmental illness or multiple chemical sensitivities (MCS), here is a place to gather, exchange ideas, links to helpful websites, even have live chats. Enjoy!

 

MCS Toxic Injuries

http://health.groups.yahoo.com/group/MCS-Toxic-Injuries/

MCS-Toxic-Injuries is a self-moderated, secular, apolitical newsgroup for toxically-injured environmentally sensitive people to support one another and exchange coping methods, treatments and experiences.

 

MCS Village

http://health.groups.yahoo.com/group/MCSVillage/

The purpose of this group is to discuss the feasibility of building a village(s)or community in which MCS/EI patients can live safely, and to provide a forum in which the legal, medical, geographic, architectural, social and funding issues relating to building such a community(ies) or village(s) may be discussed and resolved.

 

MCS Writers Group

http://health.groups.yahoo.com/group/mcswritersgroup/

A place for writers who have chemical sensitivities (or chemical injury) to share their stories and articles, work on and develop public writing skills, exchange editing skills and perspective, and develop ideas in order to bring awareness and education to the published world about what it is like to live with MCS/ES/CI/EI.

 

Midwest Oasis MCS E-mail Support

http://health.groups.yahoo.com/group/MO-MCS/

Midwest Oasis MCS E-mail Support is the e-mail arm of the Midwest Oasis MCS Support Group. Although people from all geographical areas are welcome to join, a partial focus of this list will be discussion of regional issues affecting MCS (Multiple Chemical Sensitivity) in Missouri and other Midwestern states.

 

Multiple Chemical Sensitivity (Chemical Sensitivity, Porphyrin & CO)

http://health.groups.yahoo.com/group/MultipleChemicalSensitivity/

Discussion group where people afflicted with Chemical Sensitivity, Chronic Carbon Monoxide Poisoning &/or Disorders of Porphyrin Metabolism can talk about their illness, inquire with others on avoidance, methods of cleaning & products one can use for necessary hygiene.

 

Old Dominion MCS-FMS_CFIDS Support Group · A Virginia Fibro MCS CFIDS Group  

http://health.groups.yahoo.com/group/OldDominionMCS-FMS_CFIDSsupportgroup/

Too many people in Va. have Fibromyalgia, Myofascial Pain Syndrome, CFIDS, Gulf War Syndrome (GWS), ES, and Multiple Chemical Sensitivity. The group owner wanted to create an informative, supportive group for Virginians, and others.

 

Planet Thrive

http://www.planetthrive.com/

A dynamic online community for those activity seeking answers and support for a variety of health concerns.  A place where people around the world help each other get well and stay well.

 

Sick Buildings

http://health.groups.yahoo.com/group/sickbuildings/

Toxic molds are running rampant in our homes, offices and schools. Exposure to mycotoxins has been linked to the death of infants, as well as immune-compromised adults. Despite increasing reports of mold-induced illness and health problems associated with mold exposure, our public health agencies offer little, if any support or funding for research into this growing problem.

 

Sprayno

http://groups.yahoo.com/group/sprayno/

This is a list to exchange information regarding environmental issues in the northern suburbs and NY metro area focusing especially on encouraging activism in this area and educating the public about toxic effects of pesticide/herbicide usage.

 

Tenth Paradigm Society

http://health.groups.yahoo.com/group/TenthParadigmSociety/

The Tenth Paradigm Society mailing list is for the dissemination and discussion of information concerning the NO/ONOO- cycle mechanism, a new paradigm of human disease, proposed by Martin L. Pall, Ph.D.  Dr. Pall adopted the term "Multisystem Illness" to describe those diseases that fall under the tenth paradigm. They include: Chronic Fatigue Syndrome (CFS/CFIDS/M.E.), Multiple Chemical Sensitivity (MCS), Fibromyalgia (FM/FMS), Post-Traumatic Stress Disorder (PTSD), and Gulf War Syndrome (GWS).

 

The Sanctuary

http://www.mcs-international.org/phpBB3/

MCS-International.Org's Holistic Support Forums For sufferers of Multiple Chemical Sensitivity and all other forms of Chemical Injury and Environmental Illness.

 

Toxics Discussion

http://groups.yahoo.com/group/ToxicsDiscussion/
If you're keen on a toxics-safe future for the planet, then this is the discussion group for you. Toxics are defined here as naturally occurring or man-made chemicals (elements/compounds/mixtures) that have a toxic effect.

 

WSMCSN (Washington State MCS Network)

http://groups.yahoo.com/group/WSMCSN

WSMCSN is a decentralized network of groups and individuals in Washington State who share information about the issues of Multiple Chemical Sensitivity.

 

Additional Forum Listing Webpage

http://ww.mcs-america.org/forums

 

 

Physician & Dentist Referral Lists

 

Physician Referral List by State

http://mcs-america.org/doctorlist.pdf

Proper medical care is most crucial to recovery for individuals with MCS.  Some of the physicians on this list specialize in MCS, others in FM and CFS.  It is recommended that patients and doctors consult with one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and physician.

 

Dentist Referral List by State

http://mcs-america.org/dentistlist.pdf

Dental care is often challenging for individuals with MCS.  Dental materials may cause reactions and should be tested for biocompatibility prior to use.  A holistic dentist Is generally more familiar with the needs of individuals with MCS.  Some of the dentists on this list are specifically familiar with MCS, others are not.  It is recommended that patients and dentists consult with one another prior to beginning any treatment to ensure understanding of the patient’s needs and compatibility of patient and dentist.

 

 

Air Quality Reports

 

Air Now Air Quality Reports

http://www.airnow.gov/

 

EPA State and Regional Indoor Environments Contact Information

http://www.epa.gov/iaq/whereyoulive.html

 

The National Association of Clean Air Agencies 4 Cleaner Air 

http://www.4cleanair.org/

 

American Lung Association: State of the Air

http://lungaction.org/reports/stateoftheair2007.htm

 

Current Local & National Allergy Levels

http://pollen.com/Pollen.com.asp

 

Scorecard:  Pollution Index by Area

http://www.scorecard.org/

 

Toxmap Hazardous Waste Site Locations

http://toxmap.nlm.nih.gov/toxmap/main/index.jsp

 

USA Smoke/Fire Pollution Map

http://www.firedetect.noaa.gov/viewer.htm

 

Antenna Search (USA)

http://mcs-america.org/index_files/www.AntennaSearch.com

 

EPA Safe Drinking Water Information by State

http://www.epa.gov/safewater/dwinfo/

  

EPA Radon Zone Map

http://www.epa.gov/radon/zonemap.html

 

 

Brochures

 

Air Fresheners & Plug-Ins

http://mcs-america.org/airfresh.pdf

 

Chemical in Air Fresheners Reduces Lung Function

http://mcs-america.org/lung.pdf

 

Consequences of Childhood Chemical Injury  Poster By Margaret S. O’Nan

http://mcs-america.org/onan.pdf

 

Electrosensitivity Brochure by Kato Yasuko

http://mcs-america.org/KatoYasukoElectrosensitivityBrochure.doc

 

Fabric Softener

http://mcs-america.org/fabricsoftener.pdf

 

Fragrances

http://mcs-america.org/fragrances.pdf

 

Grandma’s Cupboard:  General Cleaning Solutions

http://www.mcs-america.org/general.pdf

 

Grandma’s Cupboard:  Kitchen Cleaning

http://www.mcs-america.org/kitchen.pdf

 

Grandma’s Cupboard:  Personal Care

http://www.mcs-america.org/personal.pdf

 

Grandma’s Cupboard:  Laundry

http://www.mcs-america.org/laundry.pdf

 

Household Mold brochure from Quebec government

http://publications.msss.gouv.qc.ca/acrobat/f/documentation/2002/02-214-01A.pdf

 

ILRU:  Understanding & Accommodating People with MCS in Everyday Living

http://mcs-america.org/ilru.pdf

 

Indoor Air Chemistry

http://mcs-america.org/indoorair.pdf

 

Interior Design and MCS

http://mcs-america.org/interior.pdf

 

Jill Mellum:  Breathe Easier, Hold the Fragrances Brochure

http://mcs-america.org/fragrancefacts.pdf

 

MCS Task Force of New Mexico Brochure

http://mcs-america.org/newmexico.pdf

 

MCS Public Accommodations

http://www.nettally.com/prusty/PUBLIC%20ACCOMMODATIONS.pdf

 

MCS Statistics

http://www.mcs-america.org/MCSStatistics.pdf

 

No Scents Makes Sense Brochure

http://www.nb.lung.ca/pdf/NoScentsMakeSense.pdf

 

Theory on the Cause of MCS:  Peroxynitrite and Nitric Oxide

http://www.mcs-america.org/cause.pdf

 

Understanding Multiple Chemical Sensitivity

http://www.mcs-america.org/understanding.pdf

 

Use of Baking Soda as a Fungicide

http://mcs-america.org/fungicide.pdf

 

Vaccine Poster - Are We Poisoning Our Children?

http://www.generationrescue.org/pdf/080212.pdf

 

Visiting a Person with MCS

http://mcs-america.org/visiting.pdf

 

What you should know before visiting a person who has NRLA and/or MCS

http://mcs-america.org/VisitingNRLA-MCS.pdf

 

 

Signs

 

Acute Toxic Effects of Fragrances Business Card

http://mcs-america.org/acutetoxiceffectsoffragrancescard.pdf

 

Chemical Awareness Ribbon

http://mcs-america.org/ribbon.gif

 

Electrosensitivity Sign - Please Turn Off Your Cell Phone 

http://mcs-america.org/KatoYasukoElectrosensitivtySignTurnOffYourCellPhone.pdf

 

Facemask on Tweety

http://mcs-america.org/tweety.jpg

 

Fragrance Free Sign: Brooks University

http://www.brocku.ca/oehs/graphics/Fragrance_Free_Sign.pdf

 

No Scents Makes Sense Sign

http://mcs-america.org/scentssign.pdf

 

No Latex Sign by Jane Sagmoe

http://mcs-america.org/nolatex.JPG

 

You Could Be Next Sign

http://mcs-america.org/nextsign.pdf

 

Want to Put Your Friends and Family in Jail?

http://mcs-america.org/jail.pdf

 

Wood Smoke Trespass Flyer 8 1/2 x 11

http://mcs-america.org/woodsmokeflyer.pdf

 

 

Activist Materials

 

Fragrances on Mail and/or Catalogs

http://mcs-america.org/FragrancedMailCatalogBillsLetterforActivists.doc

 

Air Freshener Use

http://www.mcs-america.org/customairfreshenerletter.doc

 

Use of Fragrance, Cologne, and Perfume

http://mcs-america.org/UseofFragranceLetterforActivists.doc

 

Fabric Softener Emissions
http://www.mcs-america.org/LetterAboutFabricSoftener.doc

 

Letter to State Representatives to Ban Woodsmoke

http://mcs-america.org/woodsmoke.doc

 

Letter to Doctors and Medical Boards Supporting MCS as a biological Illness (fully cited and scientifically supported)

Website:  http://mcs-america.org/MCSPositionStatement.htm

PDF:        http://mcs-america.org/MCSPositionStatement.pdf

*This work is copyrighted.  Permission granted for personal use in activism provided that original copyright and authorship are maintained.  For permission to reprint, mail admin@mcs-america.org.

 

Request for Accommodations Under the Americans with Disabilities Act

http://www.mcs-america.org/RequestforAccomodation.doc

 

 

Public Service Announcements

 

Public Service Announcement #1
Air fresheners have been pulled off thousands of shelves nation-wide!
http://www.mcs-america.org/AirFreshenerPSA1.pdf

 
Public Service Announcement #2
When you use fragranced products, did you know you are wearing toxic chemicals!?
http://www.mcs-america.org/WhenYouUseFragrancedProductsPSA2.pdf

 
Public Service Announcement #3
Secondhand Fragrances are Like Secondhand Smoke!
http://www.mcs-america.org/SecondHandFragrancesPSA3.pdf

 
Public Service Announcement #4
Scented laundry detergents and fabric softeners pollute indoor and outdoor air!
http://www.mcs-america.org/ScentedLaundryDetergentsPSA4.pdf

 
Public Service Announcement #4 (SPANISH)
Scented laundry detergents and fabric softeners pollute indoor and outdoor air!
http://mcs-america.org/mcsamerica/ScentedLaundryDetergentsPSA4Spanish.pdf

 

Public Service Announcement #5
Wood Smoke... The Other Secondhand Smoke!
http://www.mcs-america.org/WoodSmokePSA5BurningIssues.pdf

 
Public Service Announcement #6
Fragrances undermine public health!
http://www.mcs-america.org/FragrancesPSA6.pdf

 

Public Service Announcement #7

Fragranced Laundry Products Pollute Our Air
http://mcs-america.org/PSA7FragrancedLaundry.pdf

 

 

Clothing & Novelties for Activism

 

MCS America Store for the Environment

http://www.mcs-america.org/MCSstore..htm

 

Zona’s T-Shirts and Stuff Zone

http://members.shaw.ca/zonaszone/shop/tshirts.html

 

 

Virtual & Work-at-Home Jobs

 

Agent, Staffing at Home

http://www.staffingathome.com/

 

Agent, West at Home

http://www.westathome.com/

 

Agent, Working Solutions

http://www.workingsol.com/home.htm

 

Blogger, PayPerPost.com

http://payperpost.com/blogger_signup.html

 

Call Center Representative, Accolade Support

http://www.accoladesupport.com/

 

Call Center Representative, Overflow USA

http://www.overflowusa.com/

 

Call Center Representative, Overflow USA

http://www.overflowusa.com/

 

Caller Employee, Customer Loyalty Concepts

http://www.customloyal.com/Employment.aspx

 

Chef Instructor, Chefs Line

http://www.chefsline.com/

 

Customer Care, VIP Desk

http://www.vipdesk.com/info/default.asp

 

Customer Service, Alpine Access

http://www.alpineaccess.com/external/index.html

 

Editor, EditFast.com

http://www.editfast.com/

 

Expert, JustAnswer Corp

http://www.justanswer.com/

 

Freelancer, Team Double-Click

http://www.teamdoubleclick.com/freelance.html

 

Guide, About .com

http://beaguide.about.com/

 

Guide, ChaCha

http://www.chacha.com/

 

Home Agent, Convergys

http://www.convergysworkathome.com/

 

Independent Call Center Agent, LiveOps

http://tinyurl.com/5xfv7n

 

Telemarketing, Intrep Sales Partners

http://www.intrep.com/

 

Online Juror, eJury.com

http://www.ejury.com/

 

Online Juror, OnlineVerdict.com

http://onlineverdict.com/

 

Online Juror, Trial Practice Inc.

http://trialpractice.com/

 

Third Party Verifier, BSG Payments LLC

http://tinyurl.com/4vcldx

 

Virtual Assistant, Virtual Office Temps

http://virtualassistantjobs.com/

 

Virtual Services, Arise Virtual Solutions

http://www.arise.com/Content/default.asp

 

Writer, Associated Content

http://www.associatedcontent.com/

 

Writer, CyberEdit Inc.

http://www.cyberedit.com/

 

Writer, MyEssays.com

http://www.myessays.com/sell.php

 

National Telecommuting Institute, Inc.

http://www.nticentral.org/

 

 

Environmentally Safer Housing

 

Allergy And Environmental Health Association Of Quebec (AEHAQ) Environmentally Adapted, Social Housing Project For People Suffering From Environmental Sensitivities

http://www.aeha-quebec.ca/bb_housingproject.htm

 

Barrhaven Non-Profit Housing Inc.

Environmental Sensitivity Units
Steepleview Crossing,
3001 Jockvale Road, Nepean, Ontario, K2J 4E4
(613) 823-6230         Fax: (613) 825-7724

http://ehaontario.ca/barrhaven-housing.htm

http://www.bnphi.org/es.htm

 

Canada-wide Housing Connection

1-613-278-0463

http://ehaontario.ca/interview.htm

 

Ecology House, San Rafael, California (built in 1994)

375 Catalina Blvd

San Rafael, CA 94901

(415) 456-4453

http://www.tikvah.com/cc/eh

eh@ecologyhouse.net

 

Escalante House
P.O. Box 652
Escalante UT 84726

Phone/Fax:  (435) 826-4778
toripat@color-country.net

 

Green Homes for Sale

http://greenhomesforsale.com/

 

Safe Haven Community Housing
P.O. Box 25281
Portland, Oregon 97298

judiths@teleport.com

http://www.geocities.com/safehavencommunity/#ntact

 

The Pandora Initiative (Canada)

http://tier10.com/

 

Quail Haven - MCS Housing
Just North of Tuscon, AZ
Call Diane Ensign for details:
May through January  call:  (406) 586-3658  (Montana).
January through May call:  (520) 825-7276  (Tucson).
http://madelinx.tripod.com/

 

Seagoville Ecology Housing
15126 Beckett Road

Seagoville, Texas 75159
(972) 287-2059         Fax: (972) 287-7682

http://www.ehcd.com/resources/ecologyhousing.html

 

The Natural Place Environmental Residence and Hotel

1962 NE 5th St.
Deerfield Beach, FL 33441

954-428-5438

http://www.thenaturalplace.com/default.htm

 

 

Safer Building & Regulations

 

Alliance for Healthy Homes

http://www.afhh.org/

 

American Lung Association:  Resources & Referrals for and from the Master Home Environmentalist program.
http://tinyurl.com/5vvk9e

 

Architectural House Plans Healthy Homes Construction Guidelines

Information: http://tinyurl.com/6dteuz

Booklet:  http://www.architecturalhouseplans.com/products/

 

Assessment of the Indoor Air Quality of a Suite for an Environmentally Hypersensitive Occupant

http://mcs-america.org/IAQforanEIOccupant.pdf

 

Considerations For Safer Construction And Renovation By Preston Sturgis
http://www.environmentalhealth.ca/w9394safer.html

 

Dr. Grace Ziem’s Environmental Control Plan for MCS Patients

http://www.mcsrr.org/resources/articles/S3.html

 

The Eco Building Guild

http://www.ecobuilding.org/

 

The Effect of Housing on Individuals with Multiple Chemical Sensitivities

http://tinyurl.com/6gor7u

 

Building for Health Materials Center
http://www.buildingforhealth.com/


Environmental Home Center
http://tinyurl.com/5ssv8a

 

Heal Your Home Center

http://tinyurl.com/6dteuz

 

The Healthy Housing Coalition:  Basic Needs for Rental Housing for Chemically Sensitive Persons

http://www.herc.org/hhc/Basicrentalneeds.html

 

Healthy Housing Practical Tips

http://tinyurl.com/5bfgzd

 

IEQ Indoor Environmental Quality

http://ieq.nibs.org/ieq_project.pdf

 

International Institute for Building Biology and Ecology

http://www.buildingbiology.net/

 

LEED® Canada Green Building Rating System

http://www.cagbc.org/leed/systems/index.htm

 

The Medical Perspective on Environmental Sensitivities:  Building codes, regulations and guidelines

http://tinyurl.com/6ztmqh

 

Moving House - Things To Look For If You Suffer From MCS

http://www.drmyhill.co.uk/article.cfm?id=147

 

Multiple Chemical Sensitivity (MCS): The Controversy and Relation to Interior Design

http://www.idec.org/publication/JIDarticleMCS.pdf

 

Optimum Environments for Optimum Health &Creativity: Designing and Building a Healthy Home or Office, William J. Rea, M.D.

http://www.ehcd.com/books/home_building_designing.html

 

Recommended Architectural Features for Multi-Family Housing to Better Accommodate Chemical and Electrical Sensitivities, Susan Molloy, M.A,

http://www.ctaz.com/~bhima/recommcshous.htm

 

Research House for the Environmentally Hypersensitive

http://tinyurl.com/5prrv3

 

Safer Construction Tips for the Environmentally Sensitive

http://tinyurl.com/5tgx7l

 

Understanding & Accommodating People with Multiple Chemical Sensitivity in Independent Living, Chapter 4, The Housing Challenge in MCS

http://www.ilru.org/html/publications/bookshelf/MCS.html#chapter4

 

U.S. Department of Housing and Urban Development National Healthy Homes Conference

http://www.hud.gov/offices/lead/2008NHHC.cfm

 

U.S. Department of Housing and Urban Development Healthy Housing Reference Manual

http://tinyurl.com/5apna5

 

 

Builders and Building Material Suppliers

 

Green Building Store

http://www.greenbuildingstore.co.uk/naturalpaints.php

 

Healthy Buildings, Inc (Air Quality Testing)

http://www.healthybuilding.com/html/about_us.html

 

Resources for the Chemically Injured: Building Materials

http://www.lassentech.com/eibuld.html

 

Tad Taylor’s Healthy Homes, LLC

http://www.healthy-homes.com/

 

 

Other Housing Resources

 

Extreme Home Makeover

http://abc.go.com/primetime/xtremehome/index?pn=apply

Ontario Human Rights Code: Policy and Guidelines on Disability and the Duty to Accommodate Non-Evident Disabilities

http://tinyurl.com/6ejep8

 

Residential Rehabilitation Assistance Program for Persons with Disabilities (Canada).

http://www.cmhc-schl.gc.ca/en/co/prfinas/prfinas_003.cfm

 

Disclaimer

This date is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred.  MCS America will not be responsible for misuse of this information or the misuse of any information provided by it’s member organizations.  Articles, citations, links and information are not necessarily the opinion of MCS America and printing does not constitute MCS America’s endorsement.

 

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Community News

 

 

 

 

Subscribe to News & Media Articles
To receive free daily news and research feeds about MCS & the environment as they happen,
send an e-mail to:
mcsafeeds-subscribe@yahoogroups.com 

 

 

Hidden threat: Elevated pollution levels near regional airports
http://www.sciencedaily.com/releases/2009/11/091118112423.htm

Pesticides in Dust from Homes in an Agricultural Area
http://pubs.acs.org/doi/abs/10.1021/es9020958

Ultrafine Particles in Indoor Air of a School: Possible Role of Secondary Organic Aerosols
http://pubs.acs.org/doi/abs/10.1021/es902471a

The Link Between Cell Phones and Cancer
http://www.doctoroz.com/videos/link-between-cell-phones-and-cancer

Walking hazard: Cell-phone use -- but not music -- reduces pedestrian safety
http://www.eurekalert.org/pub_releases/2009-11/uoia-whc111609.php

Nanoparticles used in common household items caused genetic damage in mice
http://www.eurekalert.org/pub_releases/2009-11/uoc--nui111609.php

For Some Smokers, Even Home Is Off Limits
http://www.nytimes.com/2009/11/16/nyregion/16smoke.html?_r=1

H1N1 Linked To Vitamin D Deficiency
http://thebulletin.us/articles/2009/11/15/top_stories/doc4b004bbeeeca0983629489.txt

China Investigates Deaths After Swine Flu Shot
http://www.time.com/time/health/article/0,8599,1939575,00.html

 

South Korean Teenager Jumps From Apartment Window After Taking Tamiflu
http://www.bernama.com/bernama/v5/newsworld.php?id=455167

 

Is Grandma's China Toxic?: Dinnerware tips
http://www.journal-news.net/page/content.detail/id/527952.html?nav=5004

 

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Featured Research Studies

Detection of organophosphate flame retardants in furniture foam and U.S. house dust.

 

Stapleton HM, Klosterhaus S, Eagle S, Fuh J, Meeker JD, Blum A, Webster TF.

Environ Sci Technol. 2009 Oct 1;43(19):7490-5.

Nicholas School of the Environment, Duke University, Durham, North Carolina, USA.


Restrictions on the use of polybrominated diphenyl ethers (PBDEs) have resulted in the increased use of alternate flame retardant chemicals to meet flammability standards. However, it has been difficult to determine which chemical formulations are currently being used in high volumes to meet flammability standards since the use of flame retardant formulations in consumer products is not transparent (i.e., not provided to customers).

 

To investigate chemicals being used as replacements for PentaBDE in polyurethane foam, we analyzed foam samples from 26 different pieces of furniture purchased in the United States primarily between 2003 and 2009. Samples included foam from couches, chairs, mattress pads, pillows, and, in one case, foam from a sound-proofing system of a laboratory-grade dust sieve, and were analyzed using gas chromatography mass spectrometry.

 

Fifteen of the foam samples contained the flame retardanttris(1,3-dichloro-2-propyl) phosphate (TDCPP; 1-5% by weight), four samples contained tris(1-chloro-2-propyl) phosphate (TCPP; 0.5 -22% by weight), one sample contained brominated chemicals found in a new flame retardant mixture called Firemaster 550 (4.2% by weight), and one foam sample collected from a futon likely purchased prior to 2004 contained PentaBDE (0.5% by weight).

 

Due to the high frequency of detection of the chlorinated phosphate compounds in furniture foam,we analyzed extracts from 50 house dust samples collected between 2002 and 2007 in the Boston, MA area for TDCPP, TCPP, and another high volume use organophosphate-based flame retardant used in foam, triphenylphosphate (TPP). Detection frequencies for TDCPP and TPP in the dust samples were > 96% and were log normally distributed, similar to observations for PBDEs. TCPP was positively detected in dust in only 24% of the samples, but detection was significantly limited by a coelution problem. The geometric mean concentrations for TCPP, TDCPP, and TPP in house dust were 570, 1890, and 7360 ng/g, respectively, and maximum values detected in dust were 5490, 56,080 and 1,798,000 ng/g, respectively.

 

These data suggest that levels of these organophosphate flame retardants are comparable, or in some cases greater than, levels of PBDEs in house dust. The high prevalence of these chemicals in foam and the high concentrations measured in dust (as high as 1.8 mg/g) warrant further studies to evaluate potential health effects from dust exposure, particularly for children.

 

PMID: 19848166 [PubMed - indexed for MEDLINE]

 

 

 

Regulatory T cells (Tregs) monitoring in environmental diseases.


Mićović V, Vojniković B, Bulog A, Coklo M, Malatestinić D, Mrakovcić-Sutić I.

Coll Antropol. 2009 Sep;33(3):743-6.

Department of Public Health, School of Medicine, University of Rijeka, Rijeka, Croatia.

 

The prevalence of environmental diseases is increasing worldwide and these diseases are an onerous burden both to the individual and to the public health. Urban air pollution is a grave problem in majority of metropolises, which contain high levels of traffic congestion generating great amounts of genotoxic substances. The contribution of such environmental exposure to increase prevalence of many allergic, environmental diseases and multiple chemical sensitivity or other related syndromes, as a result of an abnormal immune response based on environmental damage of lymphocyte subsets, is marked. Benzene is one of the most important air pollutants that are emitted by oil industry, since they are involved in almost every refinery process. Volatile organic compounds (VOCs) are a major group of air pollutants and play a crucial role in ecological damages, disturbing the ecosystem and human health. The variability of pollutants is an important factor in determining human exposure to these chemicals. The immune system possess a capacity to distinguish between innocuous and harmful foreign antigens and controls this action by mechanisms of central and peripheral tolerance, where crucial role play regulatory T cells (Tregs). We analyzed the characteristics of human Tregs of inhabitants living near gasoline industry which have assessed moderate spyrometric tests and compared them with those situated in rural areas. Our data demonstrate that the chronic inhalation exposure increases the percentage of Tregs cells, but contrary those of inhabitants with decreased spirometry values have shown diminished number of Tregs, which may contribute to the new therapeutic approach of environmental diseases.

 

PMID: 19860098 [PubMed - in process]

 

5-Hydroxytryptamine Receptor Stimulation of Mitochondrial Biogenesis.

 

Rasbach K, Funk JA, Jayavelu T, Green PT, Schnellmann RG.

J Pharmacol Exp Ther. 2009 Oct 29. [Epub ahead of print]

Medical University of South Carolina.


Mitochondrial dysfunction is both a cause and target of reactive oxygen species during ischemia-reperfusion, drug and toxicant injury. Following injury renal proximal tubular cells (RPTC) recover mitochondrial function by increasing the expression of the master regulator of mitochondrial biogenesis, PGC-1alpha. The goal of this study was to determine whether 5-hydroxytryptamine (5-HT) receptor agonists increase mitochondrial biogenesis and accelerate the recovery of mitochondrial function. RT-PCR analysis confirmed the presence of 5-HT2A, 5-HT2B and 5-HT2C receptor mRNA in RPTC. The 5-HT2 receptor agonist 1-(2,5-dimethoxy-4-iodophenyl)-2-aminopropane hydrochloride (DOI) (3-10 muM) increased PGC-1alpha levels, expression of mitochondrial proteins ATP synthase beta and NDUFB8, MitoTracker Red staining intensity, cellular respiration and ATP levels through a 5-HT receptor and PGC-1alpha dependent pathway. Similar effects were observed with the 5-HT2 agonist m-chlorophenylpiperazine (mCCP) and were blocked by the 5-HT2 antagonist 8-[3-(4-fluorophenoxy) propyl]-1-phenyl-1,3,8-triazaspiro[4, 5]decan-4-one (AMI-193). Additionally, DOI accelerated the recovery of mitochondrial function following oxidant-induced injury in RPTC. This is the first report to demonstrate 5-HT receptor mediated mitochondrial biogenesis and we suggest that 5-HT-agonists may be effective in the treatment of mitochondrial and cell injury.


PMID: 19875674 [PubMed - as supplied by publisher]

 

 

Disclaimer

 

This newsletter is for informational purposes and is not intended to replace the examination, diagnosis and treatment of a licensed physician and no such claims are inferred.  Articles are not necessarily the opinion of MCS America and printing of others’ opinions does not constitute endorsement.  MCS America, Lourdes Salvador, Board Members, and associate members of MCS America will not be responsible for misuse of this information.

 

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